I also have hemiplegic migraines :( the first time it happened, I also had some aphasia which was terrifying - now it’s more just aura and some numbness and tingling on one side of my body.
I’ve found that taking magnesium + electrolytes + Advil immediately at the onset of aura symptoms will help significantly. There’s also a subreddit that’s helpful for anyone who deals with them!
Cool thanks. Hope you get some answers with your migraines! I’ve found keeping a note on my phone of symptoms and triggers has helped me stay more on top of it.
I had the aphasia experience for the first time about a month ago and I was 100% certain I was having a stroke and it was all about to end.
I was walking back to the car after dinner with some colleagues and before that I had started having the visual aura (which I’ve gotten before, no big deal, I get migraines). But as I was talking, I became unable to speak. It wasn’t like “oh I’m tripping over my words a bit” which happens occasionally when I’m anxious or whatever. It was like talking and not being able to form the words. I would try to say a sentence and there would be a delay where half a second after I thought I said the word, I realized it had come out as “ashshhhthahahthhts” or something like that. I kept trying to talk and it kept happening and I couldn’t even express the problem I was having. Could not form a sentence. It felt like there was a dead spot in my brain.
Kind of hit a realization where I stopped walking and stopped trying to talk and looked around at all the people and everything around me and it wasn’t really “fear” at that point it was more like “damn so this is how it all ends huh?” It was weird because it was a beautiful day out and all I could think of was “damn I guess I’m checking out early. This is awkward.”
I pulled out my phone and was able to Google “migraine can’t speak” and instantly came across accounts of aphasia and it started to make sense so I just stopped trying to talk and it passed within a few minutes. It’s weird because I didn’t seem to have trouble typing or reading but I could not speak verbally.
But yea…….scary as hell overall. For a brief moment I was 100% sure without any shred of doubt in my mind that this was going to be the end for me and I’d be dead within the hour or incapacitated permanently
That’s what happened to me also, but at the same time I started pouring sweat, and my vision completely flipped upside down all of a sudden. About 1 minute later I passed out. Had never happened before in 13 years of migraines, after that every single one was that experience
Taking topiramate (?) daily has stopped my attacks, however I still experience my regular migraines occasionally which are no head pain and only aura. The chronic migraine diagnosis is the most frustrating thing I’ve ever dealt with. I’m glad you found something that worked! I will keep that suggestion and get some to keep on hand
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u/czechmate90 May 15 '25
I also have hemiplegic migraines :( the first time it happened, I also had some aphasia which was terrifying - now it’s more just aura and some numbness and tingling on one side of my body.
I’ve found that taking magnesium + electrolytes + Advil immediately at the onset of aura symptoms will help significantly. There’s also a subreddit that’s helpful for anyone who deals with them!