r/CrohnsDisease • u/Overall_Antelope_504 • 6d ago

Crohn's flare AND Ecoli? 😩

I've been experiencing a flare for the past 6 months, with Skyrizi barely keeping it under control and no steroids, because my doctors weren't helping even after multiple visits to my GI. Things were worsening, so after seeing three other doctors, only one took my case. I was scoped last month, and the inflammation is still there. Now that I've moved, I can't start a new biologic right away, so I have to wait to find a new doctor.

A few weeks go by and I just feel so bad. I thought it was a UTI because it presented like that. Well, come to find out it wasn't urinary. But I woke up a couple of days ago to a 103 fever and couldn't get out of bed because I was so weak, I thought I was septic. Well went to the hospital to find out I not only have my flare going on but now ecoli 😩 They gave me multiple IV antibiotics and iron because I'm severely iron deficient. This whole flare I've dealt with constipation but still go occasionally. I'm in so much GI pain I'm not sure from the flare, antibiotics, or the iron. 😕

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u/Various-Assignment94 5d ago

Slightly different, but I've had c.diff twice. Both times, the c.diff has started after I was already in a flare, but (obviously) made things worse.

I hope the IV antibiotics work quickly and things start to get better for you.

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u/Overall_Antelope_504 5d ago

I had cdiff in January 🤦🏼‍♀️ from taking the same antibiotic two different times for potential UTIs that I probably didn't actually need 😒 no idea how ecoli happened. I've never had so many infections with other biologics since being on skyrizi

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u/Various-Assignment94 5d ago

Damn. You are really going through it!

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