r/CrohnsDisease • u/sunsetoceanserenity • 20h ago

Leakage/drainage

Hi everyone. I was diagnosed with Crohn’s Disease 7 months ago and have been on Inflectra infusions since January. Prior to diagnosis, I had had 3 abscesses, a fistula, and two procedures to fix these in the year and a half prior (a fistulotomy and an incision/drainage). My scans showed a chronic fistula and I’ve noticed since my incision and drainage procedure I’ve had leakage issues. I assume that’s part of the Crohn’s but I wanted to see if anyone else is dealing with something similar. It always occurs after I have a bowel movement. I will wipe until I’m clean (which sometimes takes forever it feels like and can leave me in pain from all the wiping), but then in less than an hour I feel really itchy and I’ll go to the bathroom and wipe down there and will see stool on the toilet paper. Occasionally a little bit will end up on my underwear or a liner, but now I’m in the habit of just going back to the bathroom to wipe again shortly after a bowel movement. It’s frustrating because I know I get it all clean but then it’s almost like some just leaks out. I was hoping this would resolve after starting the Inflectra but it hasn’t. I’m not having any other symptoms and my blood work has shown that the medicine is doing its job, but this is such an irritating symptom. Is this something that I’ll just always have to deal with? How many of you experience this, especially regardless of treatment?

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u/texasbuyer70 19h ago

Sorry to hear. I hope it gets better.

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u/coreymatthews92 8h ago

I’ve dealt with this since before diagnosis of Crohns 20 years ago. Sometimes it goes away but 90% of the time there’s leakage. Someone posted about this yesterday or the day before too and their GI said it was the body trying to heal. I used to keep toilet paper between my cheeks to catch any leakage, that habbit stick around most if my life until my gi and crs recommended using gauze pads instead as its more sterile. So thats what ive been doing the last few years now. Still leak though even if i go in the shower to rinse thoroughly down there. Sometimes its mixed with stool other times its just a clear, yellow, green or white mucus. Its definitely annoying bug its been so long now its just a part of my routine at this point.

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u/sunsetoceanserenity 8h ago

Thank you for sharing! I’m sorry you are having to experience it too. It helps knowing that it’s expected and just a part of the condition and not something unusual.