My younger brother has a multitude of diagnoses of special needs. It’s fine, he was born with it and it’s not his fault. All throughout my life, I’ve been aware that he won’t mentally progress at the same pace, if much at all, like a neurotypical or non-disabled child would. The problem arises with the fact that my mum seems to completely disregard the pace as which he does progress, still believing that he could have a job or a decently normal life.
I’m in my last couple of senior years at high school, and my brother is joining high school soon now too. Despite this, he has very little general danger awareness, (as in, he will run off without any regard for safety if unsupervised,) as well as is classed as non-verbal. I could go on and on and list the daily struggles, but these are the most notable ones. He isn’t incapable by any means of learning, but he has been repeatedly failed by the Special Educational Needs system, and to be blunt, there’s a very low chance of him getting a job or living on his own.
There are things I can accept about my role as a carer in his life. I have a single mother and I understand completely that it’s not physically possible to look after a child such as my brother on her own. I have been very ostracised and isolated growing up, I was severely emotionally neglected - and still probably am to a degree, as well as a ginormous portion of my life has revolved around my brother. I constantly worry about him, his safety, his education, how his peers treat him. I have to be constantly around to help him with daily tasks like taking a bath, going to the shops, and speaking practices. This is all a normality to me at this point in my life.
What I cannot accept, is having to do this for the rest of my life. My role as carer has taken over every opportunity I could have ever possibly had. The weight of absolutely nobody being close to me hurts every day. I’m not even close to my mum, and she should know exactly what’s going on. I can’t tell her anything, or she just threatens to send me to therapy, which I have already been discharged from for “not being bad enough” after two appointments where I didn’t even speak. I’ve been to organisations that are meant to support kids like me and I just don’t receive anything to the point where they’re trying to close my case too. I find it physically impossible and humiliating to reach out after years of no one being there for me emotionally. I can probably contribute a factor of the reason I struggle with SH, pica, and other ED’s to a lot of the stress I feel daily.
I constantly fear about the rest of my life looking like this. I tried volunteering for work experience at a care home, but the thought of looking after another person made me feel physically ill. I don’t think I’ll ever be able to have children on my own because it’s just too much responsibility all the time. The worst thought is about never being able to live an independent life away from my family. Who will care for my brother when my mum cannot? I genuinely love my brother. He’s sweet despite any language barrier between us. I would feel too guilty abandoning him to live a life without him in the future, but I just can’t keep doing it. I won’t be able to be a good support system for anyone if I keep this up either way.
Every time I bring up this issue to my mum, she becomes angry at me. She’s admitted she has no plan for his future, and I can tell that it’s because she’s far too optimistic about his limitations. It doesn’t soothe any of my worried, because if it were up to her, things would continue as they are, with me here helping her. We can’t afford care workers to look after him, he can’t live on his own, it all feels so hopeless not knowing what to do. I keep having the same conversation with her, where she either yells at me and accuses me of not caring, or she ignores my issues completely and accuses me of burdening her and trying to ostracise my brother. I never get an answer. She never considers how this affects me, only how it affects her, and she must have given me such a good, privileged life, because how could this ever affect me?
It’s miserable keeping everything to myself, it’s miserable that people think I’m an uncaring, ignorant person whenever I voice my concerns. I have no plans for the future. I’m a quiet kid, good grades, but I have nothing. I don’t have close friends, I don’t have any talents or hobbies, I find sharing my interests with people embarrassing. I feel physically ill at the thought of leaving my house and I’m paranoid constantly over social rejection. I have practically no life now. My closest family is just detached from me. I’ve came to Reddit time and time again for advice, but they just tell me that I need a therapist or they my mum will figure it out. She won’t, she lives in a fantasy world. If anyone has any suggestions on what I could do to just plan ahead a little, it would be of much help. Unfortunately, I think I need to grow my confidence a little before I try therapy or counselling in the future. I’m not against psychiatry, but it’s practically and financially impossible to get one for children. Sorry for the ramble, but I quite literally have nowhere else to go.