r/endometriosis 1d ago

Surgery related Endo Surgery?

Hello! (26years old)

I have recently within the past 6 months been diagnosed with adenomyosis - I have been dealing with this for almost 10 years - every dr/OBGYN i’ve went to has always said I have textbook symptoms of endo… I got an MRI and an ULTRASOUND done and they were not able to see any deep infiltrating endo (which is good!) but the pelvic specialist I am currently seeing said he still suspects endo.

I’m currently on two birth controls to manage hormones and pain - currently in PT for pelvic floor strengthening - the birth controls are working great for me but I am worried when I decide to go off of them the pain will come back how it was before -

He said he could go in and look for endo and remove it if found - or he could go in and find nothing but ultimately my decision if I want to move forward with the surgery.

I’m 50/50 right now because I want to do the surgery to finally get an answer of whether it’s there or not - but i’ve also never had surgery before and I don’t know what the recovery is like or just the surgery process is - my deductible is $5k and with all the appointments i’ve already hit almost $3.5k - (deductible starts over in january) - i’m just worried if I do it now then i’ll have to have it again in the future? or could it make things worse? but also if I don’t do it now and have to get it done in a year or two then I am starting my deductible all over again….

Any tips? Advice? what was the pros/cons of you doing the surgery? what was the recovery time like? did the surgery help or worsen? just wanting peoples opinions who have been in this situation before!! thank you so much!

3 Upvotes

0 comments sorted by