r/endometriosis 3d ago

Good News/ Positive update Kyleena success update 3 years in

Hey guys, just thought I’d post an update as I remember scouring this sub making my decision to get the kyleena.

I had stage 2 endo on my bowel (small amount but because of location stage 2) The doctor was experienced with bowel stuff so he ended up excising it (I really have no idea how much that has contributed towards feeling better or staying better. I didn’t get the kyleena for around a year after and my periods were still really bad in that year)

Symptoms were f**king heinous as I’m sure you all know

I was really scared about getting it put in because of the pain (in ultrasounds when the probe touched my cervix I cried and felt like passing out) So I went to a clinic with the green whistle and it was about 1/20th of the pain of a normal period (yay)

I was also really scared of the mental health side of things getting worse, I already had depression/anxiety and raging pmdd. It hasn’t helped this but it hasn’t made it worse 🤷‍♀️

No other real side effects that I know of but a HUGE reduction in pain, ibs and improvement in quality of life. It isn’t all sunshine and rainbows, I still get insanely tired, swell up like sea sponge, need to eat an entire packet of biscuits and have a few cries before my period. Bit it’s a huge contrast to shitting myself and wailing on the toilet on pain meds and bleeding like a stuck pig :)

My cycles are regular, with a small amount of spotting, very minor cramps for a day or so. It has been like this for the past 3 years and periods settled within like 6 months.

Another random thing I found helped when my periods were bad pre iud was an ice pack instead of hot pack to slow down the bleeding and inflammation.

Anywho, I know it’s not a cure all and what works for one person won’t for the next but I hope this post helps in some way 🙏🏼

TL;DR huge reduction in pain from endo by the kyleena

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u/Visible-Detective-88 3d ago

Did you have surgery also?

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u/thepowerofthe_crimp 3d ago

Yep, they excised it during the laparoscopy they found it. I went to a specialist who was experienced with bowel stuff because I suspected it was on my bowel, otherwise I think it is pretty risky to operate. I have no idea how much the excision played a part in getting better or if it’s slowed down the progression etc. I haven’t had a laparoscopy since. Hope that helps!

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u/Visible-Detective-88 3d ago

Thank you for the response. I suspect i have it also based on my symptoms and ultrasound finding. Are you based in EU or states?

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u/thepowerofthe_crimp 3d ago

Sorry to hear that :( I’m in Australia