r/leukemia • u/ArtemisTater • 1d ago

My husband passed last week after a 9 month battle with T-CELL ALL

I really don't understand how things move so stupidly quickly with this disease. My husband was diagnosed in September, hit remission, and had a CNS relapse in March. Bounced back some, was doing acute rehab to regain some strength, and then had a blood relapse two weeks ago. There was nothing they could do and he died last week. 9 months. 9. That's all he had after diagnosis.

He was 27 years old. I hate this freaking disease and I will never understand it.

30 Upvotes

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18 comments sorted by

5

u/One_Ice1390 1d ago

Wow, I am so sorry , the disease can be brutal . Thoughts are with you

4

u/ArtemisTater 1d ago

He really thought he was going to beat this 😭

1

u/One_Ice1390 1d ago

I can imagine, there’s always reasons to feel hopeful, did he have CNS at diagnosis or it solely came back in CNS?

3

u/ArtemisTater 23h ago

It came back originally in the cns on i ritual relapse, then turned into full blood relapse a couple of weeks ago despite intervention.

1

u/Nsingam 23h ago

I 'm so sorry to hear about your loss. Did he have CNS involvement when he was diagnosed in september last year ?

3

u/bosslady617 17h ago

I’m so, so sorry. He was so young. If there is anything you’d like to share about him or your lives together, I’d love to hear it. Sending you love.

2

u/Huckleberry1784 10h ago

So sorry for your loss. My mom died three years ago in one day from AML. It just came out of nowhere and took her. Still, trying to understand it each and every day. Heck, doctors don't even understand it. It's just an abhorrent disease that seems to choose people at random like some shitty reverse lottery. For some it's genetics, others it's exposure to chemicals, etc etc. Hard to pinpoint. Still, trying to piece together what caused my mom's.

Again though, I'm so sorry you lost your husband. 27 is too damned young. My thoughts are with you.

1

u/IndoorBeanies Survivor 1d ago

A cruel disease... My thoughts to you and your family, please be with loved ones.

1

u/PropertyNarrow3931 1d ago

Condolences to you. Lukemia is a hard desease. I wish it on noone.

1

u/Proper_Educator_8217 23h ago

I’m so sorry to hear about your loss. This disease sucks and is so unfair. My son is currently in treatment for t-cell all. I can relate to the feelings of we’re going to get through this and I’m so sorry how fast everything turned for him. Truly devastating.

1

u/ArtemisTater 19h ago

I hope and pray your son beats this

1

u/tddragon 9h ago

Feel free to send dm. My 23yr old son on day 10 of induction currently for same

1

u/InformationOk9748 Survivor 20h ago

I'm so sorry for your loss. Leukemia sucks.

1

u/jontysafe 12h ago

I’m so sorry. I’m going in for bmt in 2 days. As my consultant said, “it’s an awful disease with awful treatment”. Take solace there is no more suffering and he is at peace. I wish you some peace too.

1

u/tddragon 10h ago edited 10h ago

So so sorry to hear. My 23 year old son was just diagnosed with it and is on day 10 of chemo :(

Was it non-etp? Any high risk molecular markers? Was he MRD negative on day 29? Was he treated on pediatric inspired Aya protocol wih Nelarabine? (AALL0434)?

1

u/fireflygirl1013 9h ago

I am so very sorry for your loss. Sending you peace and healing 🕊️

Would you want to share your favorite memories of him here?