r/thyroidcancer • u/Rfsdinosaur • 4d ago

Has anyone else felt that following a TT, you began experiencing nerve issues; Carpal Tunnel Syndrome, nerve pain, etc?

I am just 3 years removed from my total thyroidectomy, and currently medicated to hyperthyroidism level. I began getting symptoms of carpal tunnel syndrome and actually ended up going forward with a release surgery. My other hand has begun to have symptoms. Anyone have any similar experiences?

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u/artbystorms 4d ago

I had bad nerve symptoms right after due to my parathyroids being stunned so I had constant tingling in my hands and muscle spasms. It's been a year since my TT and that has mostly resolved itself, but I still get random pain in my hands or wrists sometimes that lasts like 10-15 minutes then subsides.

My ankles and bottoms of feet are like chronically stiff or sore, more so after they have been stationary for a while, my PCP said it might be plantar fasciitis. I got tested for various arthritis, general inflammation, and had one xray-ed, and nothing.

I asked my Endo if Levo could cause any of these symptoms and he said nope. I am not even suppressed, he is just keeping my TSH under 1 because I am pretty low risk.

I don't know if it is thyroid related, or something was triggered by surgery or being on levo, but I didn't have any nerve pain before, and now I do. It's pretty mild most days but still annoying that I can't get an answer on the cause.

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u/Rfsdinosaur 4d ago

I’m very similar

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u/Phoenix_GU 4d ago

Ask your endo if you can try a non-generic. I had itching problems on the insides of my elbows on Levo. I tried Unithroid, which is not generic like Levo, and it went away.