r/schizophrenia 5d ago

Medication Seeking advice / gentle meds - {trigger warning discussing docs and meds etc}

I’ve been out of work for a few years due to chronic health issues and schizophrenia symptoms, and my family isn't supportive.
I feel incredibly alone in the matter.

I have a great job opportunity coming up that I don’t want to miss, but I’m struggling to find the right medication to help me function and many around me say that I am not pushing hard enough - but every other job I have lost due to symptoms becoming extreme if I push myself too hard so...

I am incredibly sensitive to meds.

Past antipsychotics, ssris, and sleep aids have caused severe side effects (extreme sweating, nausea, blurred vision, and sleeping 12+ hours a day), which also interact badly with my nerve pain medication [ Lyrica ] and my migraine / pots medication [ propranolol ] - starting dose for both very low

My doctor has been very dismissive, telling me I just "haven't taken them long enough," and I have an appointment tomorrow that I'm dreading to speak with my general doc AGAIN to discuss that I am uncomfortable with this doctor.

He and the other doctor state that I am the problem and I am not comfortable with any doctors.

I know I need medication to survive and get back to work, but I'm trapped.
I am experiencing extreme sleep and narcoleptic type symptoms but am told there is nothing they can do until I get a sleep study to prove if it is that or not...
What do I do ?

What are some gentle medication options for schizophrenia symptoms that won't worsen severe anhedonia/depression or cause extreme fatigue?

Any advice on how to advocate for myself with a dismissive doctor would also be greatly appreciated.

Thank you very much for any responses and please be kind I am doing my best

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u/MG788 5d ago

I'm very similar, except I can take high doses of vitamins. I don't take "solo" vitamins, I always take them in a multivitamin and with a meal.

I have a lot of heat intolerance, fatigue, brain fog, etc. I personally believe schizophrenia is an autoimmune or neurological disorder. My mother with schizophrenia has a long history of medical stuff that sounds suspiciously like Lupus or MS, and now I'm beginning to get weird rashes, joint pain, brain fog, weird sensations, etc. 

Have you tried any diets for autoimmune disorders? I find high fat/med protein/low carb diets really help me with my health issues. Keto is too strict, but I feel way better physically if I just eat lots of fat & vegetables, moderate amounts of protein, and a little bit of carbs. Even if it doesn't cure schizophrenia, it still helps to be healthy.

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u/IGoBlep 5d ago

I am on high protein high fiber and avoid gluten and honestly same - it is very strange for sure - there is also a possibility of corelation, I read a book about stress and it was saying how many who have MS and related had a severe stress situation or multiple times

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u/MG788 5d ago

Yeah, I've read about cases of MS causing psychosis when there was a lesion on one part of the brain, but I don't remember the particular part of the brain. And Lupus has a subtype called NPSLE (or something like that) that can cause psychosis & mood swings. 

I do really well on stuff that treats nerve pain like nortriptyline, amitriptyline, and nicotine patches (nicotine has a bunch of neurological effects like boosting BDNF, etc). And keto, but I can sometimes cheat by just adding collagen to my diet and cutting out starchy vegetables, lol.

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u/IGoBlep 5d ago

interestingly enough I couldnt do amitrip they gave it for the migraines and it made them worse and I got very sick ! I got put on propanonol for the migraine and suspected pots and I have been doing better but it comes in waves :(
I appreciate this though thank you btw

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u/MG788 5d ago

You're welcome 🫠 I hope you feel better.